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Could your period pain be endometriosis?

For around one in ten women, endometriosis is the underlying cause of period pain. This can be quite distinct from normal period pain, so you should speak to your doctor about endometriosis is the cause of your pain.

Here we look at when to be concerned about period pain and what to do about it.

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Living with endometriosis period pain

Laura, 36, from Birmingham first started developing symptoms of endometriosis when she was 27. Over time, her periods got heavier and more painful. It took over four years of doctor's appointments to receive an endometriosis diagnosis.

Initially, Laura's endometriosis symptoms were thought to be due to irritable bowel syndrome, but as things got worse, Laura knew there must be another reason.

"To start with, my periods just seemed a bit more painful than normal," she says. "Then the pain started to take longer and longer to go away. I had to take time off work with my periods, and it seemed to worsen from there."

After numerous clinic appointments and investigations, Laura was diagnosed with endometriosis. By this time, she was missing up to a week of work every month because of her endometriosis period pain.

Laura's case is not unusual. It can take up to 7 or 8 years for some women with endometriosis to be diagnosed and receive help. This is something that charities such as Endometriosis UK and other campaigners are keen to change.

For Laura, endometriosis has had a huge impact on her life.

She explains: "For the last four years, I have been in daily pain. This has affected my social life and my career too. I have had a lot of absence from work due to being unable to function properly due to the pain."

What is endometriosis?

What is endometriosis?

Endometriosis occurs when cells normally found in the lining of your womb start to grow in other parts of your body. These cells are then shed every month in the same way as your womb sheds its lining causing a period. This shedding of endometriosis tissue causes pain. It can happen in places all over your body including your bowel, ovaries and even in your lungs.

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When should I be concerned about my period pain?

As already mentioned, most women regularly experience some period pain, but it should not be severe. If your periods are becoming progressively more painful and heavy, it is a good idea to see your doctor, especially if simple painkillers do not help in the way they used to.

Developing pain throughout your menstrual cycle that then worsens again during your period can be a sign of endometriosis. Other symptoms may be an indication that you may have endometriosis.

These include:

  • Spotting or bleeding between periods.

  • Long periods - or less time between periods.

  • Pain when going for a poo - although very rare, it can sometimes cause bleeding when you poo, though other causes such as bowel cancer need to be ruled out first.

  • Pain when having or after sex - especially a deep pain.

  • Bloating - if symptoms persist and occur daily, further investigation is necessary to rule out other causes, such as ovarian cancer.

  • Constipation.

  • Feeling sick.

  • Tiredness.

One of the problems of diagnosing endometriosis is that it can cause a wide range of often vague signs and symptoms, depending on the location of the tissue. Endometriosis symptoms may include a sensation of heaviness in your pelvis if the endometrial tissue is in that area.

Laura says: "I have long-term pain in my pelvis, bleeding when I pee and extreme pain when I have sex. I also feel constantly bloated and tired. I have tried a range of treatments - including the pill - and have now had three surgeries. The last one has helped a little but I still have so many symptoms to deal with."

Getting an endometriosis diagnosis

Remember that you are not alone - it's thought that around 1 in 10 women have some degree of endometriosis.

Start by discussing things with your doctor. Explain your endometriosis symptoms and what you are concerned the problem may be. Endometriosis is an under-diagnosed condition. One of the reasons for this is that pelvic examinations and ultrasound scans often may appear normal even in the presence of endometriosis. As such, it is important to ask for referral to a specialist should your symptoms not improve.

If you feel your problems are not being heard, it is worth taking information leaflets on the condition with you to the doctor or contacting Endometriosis UK for more advice and information. The charity has a helpline offering advice and support. It also runs online support groups so women with endometriosis period pain can meet others in a similar situation.

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Endometriosis treatment options

There are a range of treatments available that can help women with endometriosis symptoms. These include painkillers, laxatives to help constipation and treatments to help bloating and tummy cramps. Your doctor may also suggest a hormonal treatment. Occasionally, surgery is required.

Keeping yourself active, having a healthy diet and maintaining a healthy weight can also be helpful. Endometriosis is a condition that can affect many different areas of a woman's life, so please do not be afraid to seek help.

If you are concerned about your painful periods or if they are affecting your quality of life, seeing a doctor and receiving the treatment you need can make a big difference.

Article history

The information on this page is peer reviewed by qualified clinicians.

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